Position Summary/ Department Summary:
The Ebrahimi-Fakhari Laboratory within the Movement Disorders Program in the Department of Neurology at Boston Children’s Hospital and Harvard Medical School is seeking a highly motivated Clinical Research Coordinator to support clinical and translational research focused on rare childhood-onset neurological disorders. The laboratory studies the clinical and molecular mechanisms underlying childhood-onset movement disorders and related neurogenetic conditions with the goal of advancing disease-modifying therapies and improving patient care.
The Clinical Research Coordinator will play a central role in coordinating clinical research activities, including natural history studies, biomarker projects, and multi-site research collaborations such as the Spastic Paraplegia Centers of Excellence Research Network (https://www.rarediseasesnetwork.org/sp-cern). Responsibilities include participant recruitment and consent, coordination of study visits, regulatory compliance, data management, and communication with clinicians, patients, and collaborating institutions. This role provides exposure to patient-centered research and clinical trial readiness initiatives in rare neurological diseases and is ideal for candidates pursuing careers in medicine (MD or MD/PhD), clinical research, translational neuroscience, public health, or biotechnology.

Key Responsibilities:

• Coordinate daily operations of clinical research studies, including scheduling and conducting study visits
• Recruit and consent research participants and assist with participant screening and enrollment
• Collect and manage clinical data, patient-reported outcomes, and biospecimens
• Maintain accurate study documentation and regulatory binders in accordance with Good Clinical Practice (GCP) standards
• Assist with Institutional Review Board (IRB) submissions, amendments, and continuing reviews
• Maintain research databases (e.g., REDCap) and ensure data quality and completeness
• Track study milestones, enrollment metrics, and research activities
• Coordinate shipping, tracking, and documentation of research samples when applicable
• Assist with coordination of multi-site research collaborations and communication with study partners
• Support preparation of study materials, abstracts, reports, and progress updates for funding agencies
• Contribute to a collaborative and inclusive team environment

Minimum Qualifications
Education:

• Bachelor’s degree in neuroscience, biology, biochemistry, public health, psychology, or a related discipline required.

Experience:

• Two years of related work experience is required for the role.
• Strong organizational and communication skills with attention to detail and the ability to manage multiple responsibilities in a fast-paced research environment.
• Experience coordinating human subject research studies or working in a clinical research environment is preferred. Familiarity with research databases (e.g., REDCap), regulatory documentation, and IRB processes is desirable.
• Experience working with patient populations, rare diseases, or neurological disorders is beneficial.